The Forever Fix: Gene Therapy and the Boy Who Saved it

Author:
Ricki Lewis
Publisher:
St. Martin’s Press
Reviewed in:
Spring 2012
Category:

Lewis is a long-time college textbook author and magazine freelancer with a Ph.D. in genetics. Her new book, The Forever Fix: Gene Therapy and the Boy Who Saved It, tells the true story of 8-year-old Corey Haas, cured of hereditary blindness with gene therapy in 2008 in just four days, when the sunlight at the zoo hurt his eyes, for the very first time. Corey’s story is set against the backdrop of other tragedies and triumphs of this biotechnology that began in 1990. The Forever Fix is told through the voices of the children, parents, physicians, and scientists at the forefront of the field. A starred review in Publisher’s Weekly calls the book an “impressive, meticulously researched study of the exciting new developments in gene therapy.” Lewis’ goal is to bring attention to the plights of families with rare diseases.