All items from Knight Science Journalism Tracker

(English intro to Spanish lang post) Big Pharma received several critical views in Spanish media in the last few days. The most significant one was from a popular TV program, which denounced the dishonest practices that led Spain to be Europe’s most overmedicated country. The program interviewed medical doctors, pharmacists, drug company salesmen, members of Spanish health care system, and representatives of the industry. It concluded that the system is not well regulated and facilitates medical doctors to prescribe unnecessary drugs, which costs millions of euros to the government.  Other critical views derived from the publication of the Spanish version of Goldacre’s book “Mala Pharma”. We read remarks on issues like the hiding of negative results, marketing expenditure, conflicts of interest, and so on. These problems have been more discussed in English speaking press, but not so much in Spanish speaking countries. A third focus of criticism came from the new book of an anti-vaccine author. In this case, journalists have been more cautious. Some even accused the author to lie in their arguments. In a related story, European Union is preparing a new legislation to improve transparency in the results of the clinical trials funded by the pharma industry.

En la breve etapa que este tracker pasó como investigador predoctoral en el hospital Joan XXIII de Tarragona, recuerda un día de diciembre estar sentado junto a sus compañeros pidiéndole a su jefe organizar una cena de navidad de grupo. El jefe (médico) aceptó encajado, y enseguida sacó del bolsillo de su bata unas tarjetas de visita que empezó a leer por la parte de atrás. Eran tarjetas de visitadores médicos de empresas farmacéuticas, y en la parte de atrás era donde él anotaba qué tipo de “regalo” o “estímulo” ofrecía cada visitador. Había asistencias a congresos, material de laboratorio, cursos, viajes, comidas… cena! Dio la vuelta a la tarjeta, y ese laboratorio fue quien nos pagó la comilona. A ella vinieron dos encorbatados visitadores médicos haciendo chistes malos. Mi jefe prometía que nunca recetaría un medicamento sabiendo que había otro mejor, pero que en igualdad de condiciones…

Por esa época un excompañero de la facultad de bioquímica de este tracker, al terminar la carrera empezó a trabajar como visitador médico. Estamos hablando de hace más de 10 años, y somos conscientes que en estos momentos la actividad está muchísimo mejor regulada. Pero él confesaba haber visto cómo compañeros pedían facturas falsas a restaurantes “amigos” para poder ofrecer regalitos en cash a médicos. E incluso sabía que algunos los llevaban a puticlubs. De nuevo; el sector ahora está mucho mejor controlado.

Mucho más reciente, el julio pasado durante el Nobel Campus coordinado por la Univ. Rovira i Virgili, en que este tracker actuó como moderador, el representante de los laboratorios Esteve dijo abiertamente a todo el público estudiantil durante la sesión de innovación “money is who decides”, defendiendo que esto era un negocio, que lo importante era la patente, y que las innovaciones menos rentables no eran obligación suya.

Esta visión de la industria farmacéutica es la que se ha mostrado esta semana en varios espacios en España. El de más impacto, el programa de televisión “Salvados” dirigido por Jordi Évole en La Sexta. En él Jordi Évole entrevista a médicos, farmacéuticos, visitadores médicos, representantes de la industria, y agencias del gobierno. Transmite al espectador un claro mensaje de que se está abusando sobremanera de la medicación, y que en gran parte es por las artimañas comerciales de la industria, de la excesiva alegría con que médicos recetan fármacos, el descuido y exigencia del paciente, y un control insuficiente de la situación. Se discute cómo puede ser que España sea el 2º país con mayor consumo de medicamentos, porqué se recetan más medicamentos contra la osteoporosis que en Gran Bretaña (allí con menor vitamina D las lesiones óseas son más pronto), los conflictos de interés en la mayoría de miembros del comité que recomendaron bajar el nivel máximo de colesterol que se consideraba saludable, cantidad de fármacos retirados por efectos secundarios, etc.

Obvio que los beneficios de la farmacología moderna superan holgadamente estas triquiñuelas, y si hiciéramos un programa/cobertura periodística general, el mensaje debería ser netamente positivo hacia la farmacología. Pero no cabe duda que si nuestro objetivo es hacer un análisis crítico de los puntos oscuros, tenemos mucho por destapar. Estos son enumerados de manera muy clara en la revisión de Antonio Martínez Ron “Las diez peores prácticas de la industria farmacéutica, según Ben Goldacre” en La Información al libro “Mala Farma” de Ben Goldacre. Antonio cita la ocultación de resultados negativos, resultados manipulados, fallos en comités reguladores, laxitud de criterios… como conductas irregulares que “cuestan al año muchas vidas”. Es posible que algunos argumentos de Goldacre estén también exagerados, y un análisis más crítico del libro podría rebatirlos. Pero sin duda la crítica interna y razonada a las prácticas de la Big Pharma es una información muy valiosa, que está muy presente en EEUU, pero que es relativamente nueva en España. Creemos que estos textos y programas televisivos podrían estar provocando un punto de inflexión, en el que aumente la precaución y recelo hacia la sobremedicación tan frecuente en este país. 

Dicho esto, será necesarios no dejarnos llevar por la crítica excesiva ni demonizar a la industria ante cualquier circunstancia. En este sentido, muy recomendable el análisis de Daniel Mediavilla “Mentiras y medias verdades de la monja antivacunas” en Materia. La monja Teresa Forcades saltó a la fama en 2009 cuando en un video criticó de manera muy divulgativa la gestión de la gripe A. Tuvo aciertos, pero al final Forcades se reveló como una persona que manipulaba la información para dar un mensaje desvirtuado y poco objetivo contra las farmacéuticas y vacunas. Es curioso, porque en realidad muchos puntos de su argumento y el de Goldacre son coincidentes, pero a ella la miramos con mucho mayor descrédito que el segundo. En parte es merecido, por afirmaciones como que la malaria se debería tratar con dióxido de cloro, o que entre homeopatía y medicina oficial la gente debería decidir según su intuición, como expone en esta extensa entrevista en Tendencias21 “Forcades: Casi todas las farmacéuticas han sido condenadas en los tribunales”. A la monja se le puede criticar por sus “mentiras y medias verdades”, como dice Daniel, pero qué duda cabe que la ocultación de información, enfermedades inventadas, gasto en marketing, etc. son argumentos comunes a los de Goldacre y Salvados. Forcades tiene realmente razón en algunos de sus argumentos, y es justo reconocerlo. Sin embargo perdió crédito por haber tergiversado la información en sus teorías conspirativas, y ya no puede considerarse una fuente fiable. Por eso es muy importante un trabajo como el de Materia, que analiza de manera crítica a una persona que ha conseguido ser socialmente muy influyente. Son criterios para mantener en todos los casos.

Sin entrar en polémicas pero relacionado con estas temáticas, SINC publica un completo texto de Antonio Villareal “Europa avanza hacia la transparencia en los ensayos clínicos” que justo plantea una mejora en una de las críticas mencionadas anteriormente; la obligación de hacer público los datos de ensayos clínicos. La nueva legislación significará un gran aumento en transparencia, y por lo que explica el report, las farmacéuticas lo ven con buenos ojos. Parece un camino para mejorar uno de los problemas apuntados tanto por salvados como por Goldacre. Identificados dichos problemas, sería una buena oportunidad para preparar reportajes que los aborden uno a uno, como ha hecho Antonio en su amplio texto, repleto de fuentes, referencias a EEUU, y matices como la importancia de los resultados negativos. Podría inspirar más notas sobre periodismo de salud que hable sobre aspectos concretos relacionados con el papel de las farmacéuticas.

- Pere Estupinyà

Compared to dark energy or fluctuations in the cosmic microwave background, dark matter is not quite so daunting to explain.  It is indirectly detected through its gravitational pull on visible matter – stars and galaxies. There's a lot of it and we don't know what it's made of but scientists have their theories. And so there was some fanfare made over the results of an experiment called AMS meant to detect positrons that would theoretically be emitted if antimatter takes a particular form, called WIMPs (weakly interacting massive particles), and these said WIMPs collide.

The experiment is also interesting because it was conceived by particle physicist Sam Ting, and because it’s flying on the International Space Station. The results were not definitive, but there was enough to work with.

I was disappointed to see little if any explanation for why the experiment flew on ISS and not some unmanned craft. Or why it was so atronomically expensive at $1.6 billion.  

Most stories were also weak on the essential background needed to understand why scientists believe dark matter takes the form of some as-yet-undetected kind of particle and not just rocks or planets or dust or other matter that doesn’t show up or why these particles would emit positrons when they collide - it's really not obvious to general readers.

There are good explanations that go back to our understanding of the big bang and limits on how much ordinary matter can exist. There are also good explanations for why some think dark matter takes this particular form that behaves in this peculiar way.

The stories on this latest finding also gave varying estimates for the percentage of our universe made up of dark matter – some said about 80% and others about a quarter.  The answer, I am pretty sure, depends on whether you count dark energy as part of the make-up of the cosmos or not.

At the New York Times, Dennis Overbye contributed a detailed, fairly coherent story with one of the most wishy-washy quotes I’d seen for some time:

“I don’t think it makes you believe it must be dark matter, nor do I think it makes you believe it cannot be,” said Neal Weiner, a particle theorist at New York University.

Here’s how he explains the goal:

According to recent measurements by the Planck spacecraft, about 27 percent of the universe, by mass, is composed of some unknown form of matter unlike the atoms that make up us and everything we can see. Astronomers cannot see it, but they can detect its gravitational tug pulling the galaxies and stars around.

I found this paragraph confusing because the Planck results are new and obviously the designer of AMS did not know about them.  The story would have made a lot more sense if it had included how we came to understand not just the presence of dark matter but the expectation that it would take the form of some new particle. What were scientists thinking about dark matter when they built AMS and did Planck change anything critical or just offer a refinement?

At AP, Seth Borenstein and John Heilprin employed a sleuthing concept, but the story didn’t explain why this experiment had anything more to do with detective work than any other science project. Read the whole story here.

GENEVA (AP) — It is one of the cosmos' most mysterious unsolved cases: dark matter. It is supposedly what holds the universe together. We can't see it, but scientists are pretty sure it's out there.

Led by a dogged, Nobel Prize-winning gumshoe who has spent 18 years on the case, scientists put a $2 billion detector aboard the International Space Station to try to track down the stuff. And after two years, the first evidence came in Wednesday: tantalizing cosmic footprints that seem to have been left by dark matter.

The story in the Washington Post by Joel Achenbach brought the lofty concepts down to earth. It really is possible to write about dark matter so that regular people can follow you.  Read it here.

Here’s how he describes the experiment in one beautifully clear sentence:

It detects cosmic rays, which are particles moving at extraordinary velocity and coming from all over the galaxy. The AMS sorts through the particles, measuring their momentum and charge.

And see how his explanations of positrons and dark matter are simpler and more real than anyone else’s:

A small percentage of the particles that hit the detector are unusual things called positrons, which are like electrons but with the opposite charge. They’re in the class of particles known as antimatter.

Another theorized source of positrons is dark matter. If antimatter seems exotic, dark matter is even more so. No one has ever seen the stuff, and its existence has never been nailed down definitely. Dark matter emits and absorbs no light, and interacts with ordinary matter in a ghostly fashion, primarily through gravity. Dark matter is thought to affect the way galaxies move; they rotate in a manner that suggests that they are carrying some unseen load. In the past two decades, other experiments and detectors have bolstered the idea that dark matter is far more abundant than ordinary matter.

Achenbach makes it look easy. It's hard to write this way, but it sure is nice and easy on the readers. And that’s what we should be striving for – especially in stories about such difficult topics.

David Ewalt at Forbes started with this lede, which confused me because we already had indirect evidence for dark matter from its gravitational pull and we even have estimates for how much is supposed to be there. Read the whole story here.

Researchers working with NASA and the U.S. Department of Energy announced on Wednesday that they may have found evidence of dark matter, an elusive substance that scientists believe constitutes a majority of the mass in our universe, but until now have been unable to actually detect.

At the Los Angeles Times Amina Khan who led this way.

Let that long-held breath out, folks. The Alpha Magnetic Spectrometer has picked up a lot of mysterious antimatter in low Earth orbit – but that doesn’t necessarily mean it’s a sign of dark matter.

 There was something weirdly insider-ish about it that I did not get. Did she think regular people on the street were actually worked up about AMS or was it supposed to sarcastic? Read the rest here.

Other stories included this one by Carolyn Johnson at the Boston Globe, and this one by Jeffry Brumfiel at NPR

 

 Har dee har all you Midwesterners and East Coasters, it's gonna be 80 degree in Northern California today. But the news says yet ANOTHER blizzard lineup is marching across the US mid-section heading toward New England. Dang those Arctic jetstreams that don't stick to the Arctic like they used to! They're wandering south with a load of frigid air and when they wander back up there they haul warmer air north, accelerating this season's melt-off of the ice pack. Gadzooks, we really are getting a whole new planet.

   So that led to a search for some snow news. First up is a story that got a good deal of coverage. It also offers a lesson in how somebody else's rewrite might really mess with your reporting.

 1) The Adelies of Beaufort Island.

   A paper in PLOS One reports that not far from McMurdo Station in Antarctica's Ross Sea a colony of Adelie Penguins has grown substantially in recent years. The paper's theme is that, in some places, climate change has so far been a distinct plus for some creatures and these birds appear to be among them.

   It has gotten considerable coverage, with a roundup coming shortly. First however, among them was a a one-minute news summary at one major outlet as both podcast and text:

  • Scientific American - David Biello: Penguin Species Could Be Climate Winner ; Biello is an experienced writer but, again, was limited to what he could say in a minute. The text at this url sounds like verbatim from the audiocast. But it says that indeed one colony of this particular penguin species is thriving as glacial retreat exposes more of the rocky sort of shore that Adelies prefer. While the hed is over-general, the text makes clear that this is one nesting site for the species that is doing gangbuster business in nestling production, not the whole species.

 At another well-known site, Biello's piece is cited as the only source of a lark of a rewrite - by a reporter having some fun with it and alas missing some of the facts.

  • Grist - Sarah Miller: Finally, a positive consequence of climate change: More penguins! ; Egad. Some facts are in common. And this is just a toss-off by a general interest rewriter who might as easily be spicing up some celebrity gossip. But jeez. First, the paper is about the benefit so far, the winners so far, not about a species that has not only done well but will continue to do so. Second, the story notes that rocky beaches are getting more common in the southern Ross sea and ascribes its cause this way: "And now that sea levels are falling..." which is back-asswards. One supposes the writer could know her gravitational field theory and calculates that the loss of glacial mass might alter the geoid enough to actually reduce sea level locally in the Antarctic even while it's rising on average, but that seems unlikely. More likely she missed the part in both the paper and Biello's account saying that retreating glacial margins are widening the rocky beaches.

   Again, Biello had no room for expansive context. One minute read, remember, for this featurette. The fact is that Adelies' range is shifting. Their population at its northern limit, along the Antarctic Peninsula, is getting hammered by climate change. Second, the new study looks at the southernmost limit of the range and it can't get any more southern because Antarctica proper prevents further retreat. So if climate keeps changing chances seem high that these birds could get pinched out of existence. And finally it's not just climate change helping out the Ross Sea Adelies. The paper notes that commerical fishing in the general area is taking a lot of Antarctic toothfish. With those big predators being netted up, smaller fish that the penguins eat might be thriving, providing more chow for the colonies.

    Finally, if the Grist reporter had taken a moment to look for other, primary media coverage of this news,  there would have been more to go on.

Other stories:

  • Smithsonian (blog) Colin Schultz: Climate Change Means More Adelie Penguins ; Hed's poor, story has it right. Mentions their travails to the north on the peninsula. And makes crystal clear why the rocky beaches are growing and it's not falling sea level.
  • ABC (Australia) Simon Lauder: Climate change a win for one Antarctic penguin ; Hed again too general, but text is a good Q&A with the study's lead author.
  • New Zealand Herald/AAP: Penguins adapt to warm climate ; I'm going into deep quibble here, again with the hed. Adelies are among the most stubborn, least adaptable penguins or birds of any kind on the planet. They need food, will feed only neE sea ice, rocky beaches, and once they've decided to nest somewhere they TEND TO stick to it even when the climate changes and their nests get wet or snowed-under. In this case, the climate changed to better fit the animals' existing and bullheaded lifestyle. Just ask Bill Fraser (see New Yorker profile).

Grist for the Mill: Univ. Minnesota Press Release ; PLOS One paper ;

http://unews.utah.edu/wp-content/uploads/flakes.jpg2) Utah Scientists Photograph Snowflakes in Flight and they don't look like no paper doilie cutout things, hardly ever!

  This is a shorty, and the news is best read in the press release. Time lapse super-fast-shutter photos of falling snowflakes shows they rarely have the classic six-sided beauty we all read about in gradeschool. Most are mushy, freaky lumps. A few look pretty good. A few gems do have symmetry. The remaining fact to keep in one's head: no two look alike.

Stories:

Grist for the Mill: University of Utah Press Release ;

http://news.bbcimg.co.uk/media/images/66917000/jpg/_66917529_assembly.jpg3) Glacier Javelins! For Science!!

  • BBC - Jonathan Amos - Science 'javelins' spear Pine Island Glacier ; I love this story. Nothing really astonishing here, but it does provide a sense of the nitty gritty hardware one needs to really look at a moving glacier without risking death by crevasse.

 

 

 

 

 

Apparently the brain is not the only organ that’s somewhat larger in human beings than in other apes. I knew when I saw a press release from PNAS announcing a new study on penis size and female preference that this research would get some attention.  

Speculation goes back at least to Jared Diamond’s early book, Why Sex is Fun, in which he ponders why the human member is bigger than necessary to do its job.

Biologist Brian Mautz decided it was finally time to investigate, suspecting that it had something to do with sexual selection driven by female preference. So he exposed Australian female subjects to computerized images of male figures, varying in height, body shape and penis size. They found bigger was more attractive, though there was a point of diminishing returns, and body shape was a more important factor.

Online stories appeared in The New York Daily News, the Daily Beast, Boston,com, the Atlantic Wire, Science News, Gawker and dozens of other varied news outlets.

The most interesting and well-executed story I saw was this one by Rachel Ehrenberg in Science News. She included all kinds of interesting information about genital evolution in ducks and other species. The story really needed this kind of context. I did laugh at the way she phrased this line:

The handful of studies that have examined whether penis length in Homo sapiens affects attractiveness have looked at penis size alone, rather than size as part of a package of traits.

National Geographic’s Christine Dell’Amore wrote this online story headlined: Women prefer bigger penises, may have shaped evolution.

It wasn’t entirely clear whether the women or the penises shaped evolution.

The story included an outside source broaching a subject some have dubbed, “growers vs. showers.”  

But evolutionary psychologist Gordon Gallup, Jr. said in an email that there are some limitations to the team's theory that female choice played a role in penis evolution.

For one, previous studies have shown that "the flaccid human penis is an imperfect indicator of the size of the erect penis," said Gallup, of the State University of New York at Albany, who was not involved in the study.

The researchers claimed their figures were supposed to represent men in the flaccid state, perhaps reflective of some imagined pre-historic time when women could evaluate potential mates as they gamboled about in the nude. But from the look of the featureless images it wasn’t clear whether some of them were well-endowed or just becoming happy to see us.

Onward to Time, where a healthland blog post had the following link stuck in the middle: (MORE: Add Inches!! No, Really, Men Can Make It Longer).

For visuals, many news outlets relied on images of a clothed Jon Hamm - the actor who plays Don Draper in Mad Men. I wasn’t up on popular culture enough to know he’s allegedly extraordinarily well endowed, and I’m still not sure how this became such common knowledge.

Most of the stories were pretty indistinguishable from one another. Few focused on why, of all the possible science questions to investigate, researcher Brian Mautz picked this. And how did he feel about the results? And what did his parents think of all this? 

There were a couple of stories with interesting ledes, including this one by sex/science book co-author Brian Alexander appearing in Today.com:

The human male possesses the Italian designer faucet of penises. They’re pretty big, the biggest of any primate’s relative to body size. And they’re showy, too, right out there, front and center on our upright bodies (i.e., they don’t retract), as if they were meant to be seen as part of the décor. Why?

Next time I see Jon Hamm in Mad Men I’m going to think of an Italian designer faucet.

The Times of India stood out for actually running the headline, “Men with Larger Tools Attract Women.”

Several writers expressed skepticism over whether size was a big factor in mate selection. But the study didn’t really claim that it was.

The women were seeing faceless figures. They could judge only height, body proportions and penis size. Even then the bigget factor was body shape (see image for reassurance. ) The subjects had no information about intelligence, personality, facial features, stock portfolio, cooking ability or sense of humor.  

And the researchers seemed to be claiming that perhaps size was a bigger factor before clothes were invented, as explained in this quote by one of the co-authors: “Humans have slightly longer and notably thicker penises for their body size compared to other primates. It’s been suggested that before humans wore clothes, females used penis size as one of the deciding factors when choosing a mate….’’ he said.

In light of that, the best kicker was from Chris Gayomali at The Week:  

Oh. Thank goodness for clothes, then. And having a face.

(English intro to Spanish lang post) NYT had a story yesterday about Peruvian glaciers melting due to the rise of global temperatures. Interestingly, in Peruvian press we read stories covering a study done by the Peruvian Institute of Geophysics suggesting that tourism is the main cause of the ice loss of a specific glacier in Huaytapallana Mountain. The hypothesis is interesting. We’ve sent a quick email to an expert on glacier’s melting and said that ice fragmentation by tourism –especially if there’s motor activity involved- could indeed influence the speed of ice loss. The study probably deserves to be analyzed carefully, and opinions of other researchers are needed. But unfortunately Peruvian reporters have been very simplistic in their coverage. We think that they didn’t realize how interesting the topic could be, and that they missed the opportunity to write a solid story about it. 

We comment also in two controversial stories about stem cells therapies. Chilean press emphasized the work –not published yet- of medical doctors who transplanted bone marrow cells to the larynx of 4 patients with voice loss. The MD claim that they are getting great results, but we should reporters should be more cautious. In Italy, a clinic has threated 30 terminally ill kids with an illegal stem cells treatment, arguing that it’s their only hope. There’s a huge discussion in Italian media. A couple of Spanish correspondents have published great stories about it.

The AMS experiment presented preliminary results on dark matter. From the whole coverage, we comment on a very good story, and another saying that “researchers detected a lot of weird particles near the Earth”.

Claro ejemplo de cómo desaprovechar una información científica que puede ser tremendamente interesante: En los peruanos La República “Junín: Actividad turística atenta contra nevado Huaytapallana”, Perú 21 “Glaciar del Huaytapallana pierde masa por excesivo turismo”, y la agencia Andina “Turismo vivencial afectaría nevado de Huaytapallana, afirma estudio” leemos notas sobre un estudio sugiriendo que la actividad turística está afectando más que el cambio climático al deshielo de un glaciar peruano. Esto es un mensaje nuevo, que merece mucho interés. Escribir notas sencillas explicando el estudio como si fuera cualquier otro, y no dándole suficiente empaque o visibilidad en la web, es desaprovechar un tema que puede convertirse en viral, y llamar la atención de muchos otros medios. Ya hemos dicho varias veces que países como Perú no pueden perder estas oportunidades de dar a conocer internacionalmente su ciencia. (justo aquí abordamos el caos de fósiles peruanos publicados en Nature e ignorados por la prensa local).

Obvio que falta comprobar la solidez del estudio. Buscando por el nombre del autor encontramos el estudio original del Instituto Geofísico de Perú (no enlazado ni en Perú21 ni en República), que si bien no está publicado en una revista internacional, sí parece merecedor de buena atención. Sobre todo, de nuevo, porque plantea una hipótesis que se desmarca de las referencias habituales al cambio climático (ver justo esta nota de hoy del NYT sobre glaciares peruanos). Obvio que el calentamiento en capas altas está derritiendo glaciares que no son visitados de manera masiva por turismo, pero sabemos que el turismo descontrolado efectivamente puede fragmentar capas superficiales de hielo, que están son más fáciles de derretir, y que sí podría contribuir al deshielo. Las notas en cuestión dicen que hasta un 60% en el caso del Huaytapallana, lo cual es muchísimo. No es trabajo del tracker ponerse a valorar si el estudio original está bien hecho, si se puede extrapolar a otros glaciares, entrevistar a los autores, y pedir opiniones complementarias a otros expertos. Pero creemos que si algún medio lo hubiera hecho, sería una nota que podría haber tenido mucho impacto. De nuevo: en esto no se deben esforzar sólo los medios, sino también los propios investigadores y los mecanismos de difusión de las instituciones. La cultura del quedarse sentado y quejarse de “es que no nos llaman” está obsoleta.

Otro tema que esta semana ha dado varias notas de matiz diferente son las células madre. Empezamos por un artículo de Cecilia Yáñez “Médicos chilenos crean pionera terapia con células madre” en el chileno La Tercera, publicitando una terapia reparar cuerdas vocales de afónicos a base de células madre extraídas de la médula osea. Ojito con esto. Son 4 pacientes, no se han publicado los resultados todavía, y alrededor de la aplicación de las células madre todavía hay más exageración y riesgos que realidad. Creemos que la nota debería haber sido más cauta. De hecho, como decíamos, esta semana varios medios españoles están hablando del escándalo en Italia de un psicólogo que aplicó a 30 niños terapias con células madre no autorizadas (Lucia Magi – El Pais). El texto de Lucía está muy bien trabajado, explica el argumento de la esperanza utilizado por los médicos, muestra las protestas de los investigadores, y refleja las incertidumbres del gobierno (complementa con otra nota donde el senado italiano no decide cómo actuar). Tema muy interesante, que también aborda desde Italia Ángel Gómez Fuentes “Polémica en Italia por un método de curación con células madre prohibido” para ABC. Parcialmente relacionado, también en España se ha desarticulado una red que cobraba entre 1800 y 2500 euros por criogenizar sangre de cordón umbilical, y que no guardaban o traficaban con ellas (leer nota de Europa Press en El Mundo). Los periodistas de salud deben ser muy cuidadosos con el tema de las células madre.

Última temática, el anuncio de “novedades” referentes a la materia oscura procedentes del detector AMS (Alpha Magnetic Spectrometer) situado en la estación espacial internacional, dirigido por el Nobel Samuel Ting y diseñado para captar antimateria en el espacio. Entrecomillamos lo de las “novedades”, porque semanas atrás se estaba insinuando un gran hallazgo (muchos esperaban unos candidatos a materia oscura), pero al final no se ha presentado como nada todavía concluyente. El anuncio del inesperado exceso de positrones en el espacio no es menor, al contrario. Es una noticia muy importante, y quizás dentro de unos meses sí se podrán relacionar con la materia oscura. Sólo que se esperaba algo más contundente, no un paso intermedio que nos recuerda a los periódicos anuncios en la carrera hacia el Higgs. (insistimos; es lo que nos hicieron creen investigadores e instituciones)

Los primeros que sacaron la noticia fueron Materia por medio de un muy buen texto de Nuño Domínguez “La materia oscura se escapa por poco”, quien además de dar contexto y explicar de manera muy clara los resultados del experimento, busca diferentes opiniones externas, que muestran diferentes grados de sorpresa por la noticia. Otras notas son la de Alicia Rivera “El detector de la estación espacial avanza en la búsqueda de la materia oscura” en El País, con muchos datos pero un poco confusa, o el sensacionalista y distorsionador titular de José Manuel Nieves “Detectan un gran número de partículas extrañas cerca de la Tierra” en ABC

- Pere Estupinyà

Gary Schwitzer of HealthNewsReview.org has pointed me to an incisive and entertaining post by a Canadian writer who makes toast of Gwyneth Paltrow's new cookbook, "It's All Good: Delicious, Easy Recipes That Will Make You Look Good and Feel Great." 

The blogger is Julia Belluz, the senior editor at The Medical PostThe blog is Science-ish, a joint project of the Canadian publications Maclean's and the Medical Post, and the McMaster Health Forum at McMaster University in Hamilton, Ontario. And the post should put Paltrow out of business. 

"Science-ish was immediately stung by the panorama of pseudoscience premises on which the cookbook rests," writes Belluz. She continues:

[Paltrow] undergoes what sounds like every medical test imaginable, and finds she has a thyroid problem, anemia, vitamin D deficiency, a congested liver, hormones that were “off,” and “inflammation” in her system. “Another roster of tests” exposed “high levels of metals and a blood parasite.” Mixing her young children into the madness, she gets them tested for food sensitivities, too, and finds they are all intolerant of gluten, dairy, and chickens’ eggs, among other things.

Some of the ailments, such as "inflammation in her system," Belluz writes, "are questionable bordering on quackish," but "the most distressing part of the book is what comes next." Really? How much worse can this get?

Paltrow's doctor, instead of addressing Paltrow's complaints in the usual way, "advises she cut out basically everything but quinoa and lettuce," Belluz writes. "No meat, potatoes, sugar, dairy, eggs, coffee, alcohol, wheat, and, oddly, bell peppers, corn, and eggplant." And she prescribes this to readers of the book, Belluz writes.

"The enduring question that Paltrow’s book raises is why we continually buy into the junk advice of celebrity health promoters who have no specialization in health and everything to gain from us believing their claims."

I know the answer to that one. It's because they are so good at presenting it. Celebrities become celebrities because a lot of people like them, or find them amusing, or find their work touching and profound. Celebs know how to tell a story and how to move people, and that works whether they are playing Shakespeare, Shakespeare in Love, or the role of a diet guru. 

Need another timely example? Watch Jeremy Irons talking to HuffingtonPost  about gay marriage. He's saying something about taxes, fathers marrying sons, incest, and dogs. It makes even less sense than Paltrow.

But he says it so well.

-Paul Raeburn

 

 

 

 

 

 

 

 

 

In a little more than a week, two interesting things have turned up in the news regarding cable TV and the Internet. Yesterday, the FOX network said it would stop broadcasting its shows over the airwaves if it lost a court case involving the tech company Aereo. That was news because last week, a court sided with Aereo in the latest legal decision.

Now what court case was that, exactly?

In a nice, concise story by Joe Mullin yesterday, arstechnica reported that this case and other recent decisions are turning against the cable giants in favor of the upstarts. The story referred to last week's case as "the appeals court decision ruling that Aereo doesn't infringe copyright." The rest of the story said more about FOX's threat and said all of the networks will continue to fight the case in court.

If you didn't already know what last week's decision was, you'd be in trouble. 

But, as you might suspect, I'm leaving something out. The story linked to an arstechnica story last week on the court decision. So the background was easily accessible--but it wasn't there in the story.

It should have been. As easy as it is to click on the previous story, readers deserve a chance to read through the story they are looking at with enough background to understand what's going on. They can click for additional background--but they shouldn't have to click for essential backstory.

Cecilia Kang in The Washington Post took a very different approach, writing what amounted to a feature story about Aereo that began this way:

For consumers who want to cut their cable cord and get all of their television from the Internet, there’s been a major obstacle: It’s hard to get live sports and local news.

Now a Web start-up, called Aereo, is offering to remove that last barrier with a simple method. It is using antennas to pick up programming from public airwaves and then deliver shows into homes that have a Web connection — for as little as $10 a month.

The story got to FOX's threat in the fourth graf, but it had already neatly explained what Aereo was in the second graf, above. And that same fourth graf also provided this very brief but helpful summary of the court case: "In lawsuits, they [the networks] argued Aereo is little more than a content thief. But their efforts to persuade federal courts to shut it down have failed."

Sam Gustin at Time magazine leads with the FOX comment and also does a nice job providing background on Aereo and what it does, but quotes The New York Times regarding the court case. He might have done better to report the case himself.

And what, we might ask, did The Wall Street Journal--owned by News Corp., which owns FOX--write about this story? It did not lead with the FOX comment or the court decision. Instead, Shalini Ramachandran led with this: "The TV industry's best hope of shutting down TV startup Aereo Inc. anytime soon could rest, bizarrely enough, on a legal case involving something called Aereokiller LLC."

I hadn't noticed "Aereokiller" in other stories, and here it was in the lede. Ramachandran briefly describes the court decision in the second and third grafs, and then gets to FOX's threat to shut down its free broadcasts over the airwaves. Most of the rest of the story deals with Aereokiller, a copycat service that uses similar technology to do what Aereo does, but which has lost some court decisions, setting precedents that might threaten Aereo. 

Others who didn't mention Aereokiller should have mentioned it. I didn't see any mention of it in The Washington Post or the arstechnica story from last week. 

Decisions about how much background to include in a story can be tricky. Too much, and story seems bloated. Too little, and readers are left puzzled. Links can be helpful, by directing readers to more information, but they should not substitute for proper explanation and background in the story itself.

-Paul Raeburn

   Sam Ting to the rescue of an intellectual legacy for ISS?

   For years - since well before 1998 when the International Space Station finally started coming together in orbit thanks to the genuinely heroic work of engineers and astronauts - many including yours truly have scoffed at it as a waste of money. Just to design and build it (marvelous USA Today graphic) cost around $100 billion. I can't lay hands on the operating budget, but it cannot be small. It's a waste, at least, if one scores it on scientific merit rather than as a display of mostly-US aerospace engineering prowess and dominance. Just maybe, the worm is turning. Not that this complex of solar panels, pressurized modules, and docking ports for space freighters devoted mostly to keeping a few people alive inside to run the place will go down as an entirely sensible investment. But even if automated platforms could have done nearly all of it cheaper, there is no undoing the ISS and it may soon be accumulating a resume of meaningful, grandly important bits of pure and applied research.

  Last week tracker Faye Flam's roundup post here at the tracker looked over accounts by the world's science press on hints of paydirt from a big detector that astronauts fastened two years ago to one of the  space station's girders. It is not the first experiment to do so, but it has revealed the strongest signs yet of an unexpected irregularity in the flow of antimatter particles streaming in from way out there.  According to the Alpha Magnetic Spectrometer experiment team, led by Nobel-winning physicist Samuel Ting of MIT, the data meander might be handiwork by particles of that elusive inter-galactic glue, dark matter. If so, that's fab. Dark matter is a tantalizing mystery of the first rank, inferred by such subtle but vast effects as gravitational interference with the rotations and relative motions of clustered galaxies. At a guess only dark energy with its confusingly similar name out-ranks dark matter among cosmic stumpers.

   Maybe the Alpha detector's A-level adventure in science aboard the ISS is even a trend. If one goes by media attention one has  a few hints to go on including:

 http://images.natureworldnews.com/data/images/full/1134/nicer.jpg?w=600 1) NICER, for Neutron Star Interior Composition Explorer, has been given a green-light by NASA as an Explorer-class mission (which means fairly modest by space-dollar standards, or less than $55 million). It is to be hooked to ISS in 2017. It will not only gather information on the physics of neutron stars, but use their pulsar emanations as beacons to undergird a sort of global positioning system for the whole solar system.

    Stories:

Grist for the Mill: NASA Goddard Press Release ;

http://www.extremetech.com/wp-content/uploads/2013/04/nj463096f1_online-300x147.jpg2) Quantum entanglement - Plans are afoot to put an experiment aboard ISS to give so-called spooky action at a distance its toughest test so far. The orbiting instruments also should anchor a prototype global quantum communication network. Whatever that means.

Grist for the Mill: Institute of Physics (UK) Press Release ;  New Journal of Physics article abstract ;

   These last items didn't get much attention from major media. But they and the dark matter data coming in from the Alpha Magnetic Spectrometer  do seem to signal a new rigor to research on board the station, as though it is assuming a role in major league science. None of the coverage that met the tracker's eye makes note of this angle, a transition from highest hi-tech trailer park ever to serious international laboratory. It is a theme worth a deeper look than this post's quick riff.

    To be sure, if one reads NASA's websites the impression one gets of the International Space Station is that it has been aswarm with nifty science all along. An agency-sponsored blog called A Lab Aloft has a post up right now on the research by a university group whose project - tended by astronauts - explores plant signaling. The young principal investigator declares, and there's little doubt of its truth to her, that the work is inspiring and generates immense enthusiasm among students on the team. Another post reviews the 2012 science year on ISS, listing studies of productivity in the world's oceans as sensed from orbit, refinement of space applications for robots, bone loss in microgravity, effects on microgravity on astronauts' and other occupants' vision, and the slow flames and distinctive rates of chemical reactions that occur in the spherical zones of burning around bits of lit fuel. Elsewhere, we find a perennial topic for NASA's p.r. machine - a talk session between school children (in Texas, this time) and astronauts aboard ISS.

  In 2008, when major construction was largely complete, NASA released a long report on what science had already been done by astronauts and other ISS crewmembers when not tied up by construction and maintenance tasks. It listed more than 100 research projects and experiments. Most appear to revolve around space station science that studied the space station itself, durability of materials in space, and the biological side of living and traveling in space generally. It has been decent research so far, but self-referential - not much of the sort that changes the way we view ourselves or the workings of the cosmos. No wonder the station has such a low profile in both public and scientific consciousness.

 

The Pulitzer Prizes won't be announced until Monday, but Investigative Reporters and Editors and the custodians of Syracuse University's Mirror Awards for reporting on the media industry have announced their winners and finalists. (The Mirror Awards announced finalists only; the winners will be announced at a June 5 ceremony in New York.)

Several science, environment and technology stories are among the winners and finalists.

The Seattle Times was a finalist for an IRE award with a story on "the dark side of elephant captivity," and National Geographic made the finals with a piece called "Blood Ivory," about the ivory trade. The Charlotte Observer was a finalist for a story called "Prognosis: Profits," about aggressive hospital billing practices. And you can find others in the IRE list on failures of medical care and social assistance programs, groundwater contamination, black lung, and tissue donations. 

If I'm not mistaken, almost all of these science, medical, or science-leaning stories were finalists, not winners. (The Belleville News Democrat (Ill.) won in the small print/online category for a story on the failure of a state agency to prevent the deaths of severely disabled adults in their own homes.)

 The rest of the winning stories dealt with such things as the Benghazi consulate attacks, prisons, schools, police, and political corruption. 

The Mirror Award finalists include a piece on coverage of the gun crisis in Philadelphia, one on a photographer with PTSD, and other stories that do not deal with scientific or medical topics, but which should be of interest to journalists of all kinds.

-Paul Raeburn

As I pointed out in a recent postTime magazine's April 1 cover story, "How to Cure Cancer," is sure to raise false hopes among people grappling with cancer. It must also be devastating to those who have just lost someone to cancer, and who might now think that their lost loved one just missed being cured. 

In a second post, I wrote that Time violated industry guidelines by running a full-page ad for M.D. Anderson in the middle of the story--a story that extravagantly praises the work of M.D. Anderson. The guidelines, devised by the American Society of Magazine Editors, specify that an ad should not run next to editorial copy that touts the same things touted in the ad. More importantly, I wrote, Time's ad placement created the impression that it wrote the story to sell the ad, not to enlighten readers. The story was eight pages long, and the M.D. Anderson ad was the only ad in the story.

Did Time promise M.D. Anderson favorable coverage in return for buying the ad? Both Time and M.D. Anderson told me that did not happen. But there are reasons to be suspicious. 

Time's spokesman, Daniel Kile, told me that Time follows industry guidelines, although it clearly did not in this case. I asked Time's science editor, Jeffrey Kluger, about the placement of the ad. Kluger said in an email, "I honestly have nothing to add to Daniel's statement. We do honor ASME guidelines."

Kile also made a point of noting that "this ad was sold well before the story was written." The implication was that Time did not praise M.D. Anderson in order to sell the ad. (As an aside, I'm willing to bet that the author of this piece is a cancer survivor or had a family member who recently survived cancer. The story has that ring to it. Could he have received his treatment at M.D. Anderson?)

What Kile did not say was that M.D. Anderson's public relations office knew that Time was working on the story before the cancer center's marketing people purchased the ad.

Laura Sussman of M.D. Anderson's external communications office said that her office worked with Time on the story "as far back as October." Cheryl Chin, M.D. Anderson's marketing manager, told me the ad was purchased "several months ago." She said this was M.D. Anderson's first ad in Time.

"It is a new publication for us, and one we are hoping to use going further," Chin said in a telephone interview. She said M.D. Anderson was told that its ad would appear in an issue of Time that contained a story on health. Months ahead of time, Chin knew that the April 1 issue of Time would contain health content. M.D. Anderson wanted a "right-hand read," meaning the ad would appear on a right-hand page. "Most people are right-handed, and when they flip they see the right-hand pages," Chin said. (M.D. Anderson got the right-hand read.)

Bill Saporito and Alice Park, who reported and wrote the Time story, were likely unaware of the ad. But as the April 1 issue came together in late March, the managing editor would surely have spotted the connection between the ad and the story. Why did Time not move the ad elsewhere in the magazine? 

Advertising people will say I'm making too much of all of this, and I confess that I was naive about the amount of coordination that apparently goes on between advertisers and publications. In the absence of anyone admitting that the placement of the M.D. Anderson ad was more than a coincidence, it's impossible to say whether Time and M.D. Anderson worked together to produce this public-relations triumph for M.D. Anderson.

It comes at a good time for M.D. Anderson, which, Chin said, has "transitioned" its spending to national publications. "M.D. Anderson is not very well known nationally, so we are trying to put more of our placement in national publications," she said.

M.D. Anderson apparently also badly needs a morale boost. The Cancer Letter, an independent Washington-based newsletter, obtained the results of a recent internal survey of M.D. Anderson faculty in which many faculty members "pour out concern--even sadness--about continuing departures of faculty stars," and describe M.D. Anderson President Ronald DePinho as "disengaged," "imperious," and "dictatorial," according to a story by The Cancer Letter's editor, Paul Goldberg.

One important reason for the sagging morale was a controversy over the Cancer Prevention and Research Institute of Texas, which awarded a large grant to Lynda Chin, DePinho's wife, without peer review, a story that has been covered in the Houston Chronicle, but has not received much coverage elsewhere, as I wrote in a post last October. (Lynda Chin and Cheryl Chin are not related.)

Lynda Chin, incidentally, was one of the first scientists quoted in the Time article. 

I ended that October post with a question: What else, we might ask, is going on at M.D. Anderson?

I'm still asking.

-Paul Raeburn